Chapter 1: Facing Scoliosis

This message is dedicated to the curvy girls navigating their unique journeys.

When I reminisce about gym class during middle school, I often picture the athletic girls, robust from throwing dodgeballs and swinging bats. However, if I dig deeper into my memories, I unearth a pivotal moment that marked the start of a significant journey. On that day, likely in 6th or 7th grade, the school nurse and a gym teacher lined us up by the brightly colored bleachers to conduct a quick examination of our backs. After everyone had their backs inspected, we were allowed to play basketball. When it was my turn, I bent over, and the nurse scrutinized me closely. After she slowly ran her protractor-like tool along my spine, she handed me a pink slip with a sigh and sent me on my way. Reluctantly, I showed it to my mom, who insisted we needed to investigate further due to our family history of back issues. Little did I know, my 12-year-old self was about to enter a whole new world.

After being diagnosed with Idiopathic Scoliosis, I was deeply involved in cross country and track, fearing my athletic days were over. All I wanted was to blend in with my classmates who had straight backs, but instead, I faced a barrage of doctor visits and x-rays at various hospitals, including Shriner's Hospital. I vividly recall my first spine x-ray; it was an incredibly embarrassing experience. Before entering the x-ray room, a technician asked if I was pregnant, once we had moved a few steps away from my parents. Her serious demeanor made the question all the more absurd. I imagined other kids my age might have similar questions for different medical reasons, but for a 12-year-old who hadn’t even started menstruating, it felt ridiculous. To monitor my curve, I participated in a trial study called the Scoliscore test, which aimed to predict the likelihood of curve progression. I had to provide a saliva sample, which I really didn’t want to do, but I was told it was necessary. Each appointment, roughly every 3–6 months, was filled with anxiety.

Anxiety over curve progression.

Anxiety about potential surgery.

Anxiety about being limited in my activities.

Anxiety over how others perceived me.

Anxiety regarding future childbirth.

PC: Tallulah Pomeroy

This anxiety often accompanied a slight increase in the degree of my curve. On the ride home, my mom would look at me with disappointment, as if I could somehow control it. You could say that scoliosis appointments had a significant impact on the mood for the rest of the day. "Watch and wait" became our mantra with the doctors. Waiting for surgery, I often wondered why there was no other option but to wait for impending doom. Scoliosis can rob you of your dignity, twisting your spine in ways that feel invasive. I once participated in a week-long program using the Schroth Method during a holiday break after my diagnosis. This method focuses on exercises designed to stabilize curves. Nothing quite says “Merry Christmas” like crying in a hotel shower after being stretched and manipulated all day. The process was exhausting, and my spine extends from my tailbone up, meaning therapists and doctors pulled my clothing aside to examine everything. As someone who values privacy, I found this particularly uncomfortable. It was also disheartening when they noticed one leg was longer, a hip misaligned, or a shoulder uneven. Through the Schroth Method, I learned to align my body, but I was constantly instructed to tuck my tailbone. My natural stance caused my hips and backside to arch due to my spine's condition. Some believed I did it for attention, but it was simply how I was built. Despite my crooked spine, I never had to wear a brace, which I've heard can be quite uncomfortable.

I never paid much attention to how I dressed until I caught a glimpse of myself while exercising and noticed the unevenness in my waist. I stopped wearing tight-fitting shirts because I didn't like how it looked. My mom always reassured me that no one noticed, but anyone with scoliosis knows the truth. Clothing fit can be off or highlight curves, so I often opted for loose t-shirts or carefully planned outfits. It’s frustrating when those who are fully able express a desire to lose or gain weight, as they can change their appearance. For scoliosis warriors like myself, that’s not an option. Watching others neglect their health while we face unique challenges is disheartening. Yet, I can confidently say that scoliosis warriors exhibit incredible strength and resilience, fighting through greater obstacles while igniting double the passion. I remain the same determined person I was when I received my diagnosis; no curve in my spine will hold me back. Though bent, I am not broken.

In my research, I discovered that the Scoliosis Research Society relies on grants and donations for funding, as they do not receive direct financial support. Since 1994, they have raised over $4.4 million for spine deformity initiatives. However, we must question if that amount is significant compared to the $4 billion allocated annually for other health issues. Scoliosis affects 2–3% of the U.S. population, highlighting the need for greater awareness and advocacy for this often-misunderstood condition. I’ve got your back—now will you have mine?

Chapter 2: Raising Awareness Through Video

In the video titled "This New Jersey Art Teacher Went Viral Over Her Curvy Body," we explore the inspiring story of a curvy art teacher who embraces her body and challenges societal standards. Her journey resonates with many girls facing similar struggles and promotes body positivity.

Another compelling video, "Ivory and LornaLitz Go At It | Curvy Girls," showcases the experiences of curvy women as they navigate their lives, friendships, and challenges. This content highlights the importance of community and support for girls dealing with body image issues.